{"id":876,"date":"2021-05-13T23:03:10","date_gmt":"2021-05-13T23:03:10","guid":{"rendered":"https:\/\/humansofchronicillness.org\/?p=876"},"modified":"2021-05-13T23:03:10","modified_gmt":"2021-05-13T23:03:10","slug":"martin-w","status":"publish","type":"post","link":"https:\/\/humansofchronicillness.org\/2021\/05\/martin-w\/","title":{"rendered":"Martin W."},"content":{"rendered":"<p>Cancer, heart disease, HIV\/AIDS, Parkinson\u2019s. All are horrific diseases. But those afflicted can find a doctor or medical center for treatment, usually near their home. This is not the case\u00a0 for the more than 100,000+ persons in California with ME\/CFS, 25 percent of whom are bed-bound, many unable to tolerate sound or light.<\/p>\n<p>Many cannot work and are homebound, as is my daughter. Many are misdiagnosed and go from doctor to doctor to no avail.<\/p>\n<p>We ask you if you treat our daughter:<\/p>\n<ul>\n<li>Do not advise a pwME to do physical exercises; they only make patients more ill.<\/li>\n<li>See the award-winning, free documentary, <em>Unrest<\/em> (available on Netflix) to better understand ME\/CFS.<\/li>\n<li>Take other courses about ME to get CME credits. There are credits available for watching <em>Unrest <\/em>at<\/li>\n<\/ul>\n<p><a href=\"https:\/\/www.unrest.film\/cme\">https:\/\/www.unrest.film\/cme<\/a> and other places.<\/p>\n<ul>\n<li>Check out: Medscape: Diagnosing ME\/CFS:<\/li>\n<\/ul>\n<p>The Experts Weigh In\u00a0 <a href=\"http:\/\/www.medscape.org\/viewarticle\/907632\">www.medscape.org\/viewarticle\/907632<\/a><\/p>\n<ul>\n<li>Michigan State Medical Society: <a href=\"https:\/\/connect.msms.org\/Shop\/Product-Catalog\/Product-Details?productid=%7b5FDCB498-B187-E911-80FB-000D3A0DE1A1%7d\">Update on Chronic Fatigue Syndrome Part 1: Clinical Diagnostic Criteria for Chronic Fatigue Syndrome\/CFS now called Myalgic Encephalomyelitis or ME\/CFS<\/a><\/li>\n<li>Update on Chronic Fatigue Syndrome Part 2: Uniting Compassion, Attention, and Innovation to Treat ME\/CFS<\/li>\n<li><a href=\"https:\/\/connect.msms.org\/Education-Events\/On-Demand-Webinars?topic=2\">https:\/\/connect.msms.org\/Education-Events\/On-Demand-Webinars?topic=2<\/a><\/li>\n<\/ul>\n<ul>\n<li>Medridge Education: \u00a0 ME\/CFS Part 1: Introduction and Identification: ME\/CFS Part 2: Etiology and Analeptic Management:<strong>\u00a0 <\/strong><a href=\"https:\/\/www.medbridgeeducation.com\/courses\/details\/me-cfs-part-1-introduction-identification-todd-davenport-staci-stevens-mark-van-ness?fbclid=IwAR3NP8KoQA-4QtGBUE_mZ5q0nr68yRFmZBdBd5wE6sxYs5N8W7GnY9inH7I\">https:\/\/www.medbridgeeducation.com\/courses\/details\/me-cfs-part-1-introduction-identification-todd-davenport-staci-stevens-mark-van-ness?fbclid=IwAR3NP8KoQA-4QtGBUE_mZ5q0nr68yRFmZBdBd5wE6sxYs5N8W7GnY9inH7I<\/a><\/li>\n<\/ul>\n<p>&#8211; Martin W., father of a pwME<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Cancer, heart disease, HIV\/AIDS, Parkinson\u2019s. All are horrific diseases. But those afflicted can find a doctor or medical center for treatment, usually near their home. This is not the case\u00a0 for the more than 100,000+ persons in California with ME\/CFS, 25 percent of whom are bed-bound, many unable to tolerate sound or light. Many cannot [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":877,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"spay_email":""},"categories":[23],"tags":[],"jetpack_featured_media_url":"https:\/\/humansofchronicillness.org\/wp-content\/uploads\/2021\/05\/pine-watt-2Hzmz15wGik-unsplash-scaled.jpg","_links":{"self":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/876"}],"collection":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/comments?post=876"}],"version-history":[{"count":0,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/876\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media\/877"}],"wp:attachment":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media?parent=876"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/categories?post=876"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/tags?post=876"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}