\u2018My mate\u2019s Aunt had ME, she took dill capsules three times a day for a week, by the fifth day she was running marathons. You should definitely try it.\u201d<\/p>\n
\u201cOh gosh, thank you, yes, I will, I\u2019ll look into that.\u201d<\/p>\n
\u201cNo really, you should.”<\/p>\n
\u201cYes, no, thank you I will, definitely.”<\/p>\n
One of the great joys of living with ME is that there isn\u2019t a miracle cure that we haven\u2019t heard about. In detail. You could confidently send us to any miracle cure convention, anywhere in the world and have us replace the lead speaker without fear of detection. I realise it is very niche, but Secret Service, if you\u2019re listening, miracle cure delegate impersonator, is a skill that I can definitely offer, should you ever be in need.<\/p>\n
The truth is, of course, that a lot of these things do help. Vitamin D does help, in the winter and better bedding or posture will relieve or at least transfer some of the pain. Reducing toxins and increasing vitamins in the diet helps ME sufferers, in exactly the same way it helps everybody. They help with some of the symptoms for a short period of time, but they don\u2019t cure us. If that crank diet cured your Aunt, then your Aunt definitely didn\u2019t have ME.<\/p>\n
And I should know because I have tried them all. Well nearly all, I\u2019ve slacked off a lot in recent years and have chosen a new far more effective remedy, I just don\u2019t tell people.<\/p>\n
I simply don\u2019t tell new people that I have ME. It saves so much energy, energy that can be used for things other than being polite about turmeric and miracle blankets. What I\u2019ve discovered is that there really is no need to tell people anything about my illness and that not telling them frees up a huge amount of conversation time for other, more interesting things.<\/p>\n
I don\u2019t want to spend my excruciatingly few social occasions talking about someone\u2019s best friend\u2019s cousin\u2019s neighbour\u2019s miracle magnet cure. I don\u2019t want to know what they think I should be doing to cure myself. I don\u2019t want to be irked that they\u2019re lecturing me on an illness that I\u2019ve had for over ten years, because they once met somebody who had it. Being irked makes me tired and I don\u2019t have the energy for that. Instead I want to hear about their life. Live vicariously through whatever they\u2019ve been up to. It doesn\u2019t have to be what it was like to feel a cool breeze on their face as they cycled up a Greek mountain, or a fascinating trek through the jungles of Borneo. They can tell me it all. I\u2019ll listen, I have no stories of my own, I\u2019ll gladly listen to their everyday complaints, tales of traffic or supermarkets and the terrible bosses they\u2019ve had to endure. Such tales are a tonic for me, a tonic that brings the real world back into my life, a tonic that will do me more good than that miracle cure made from the rinds of thirteen grapefruit that they might offer me, if they knew.<\/p>\n
So, next time you have the opportunity, I urge you to give it a go. Next time you meet somebody who doesn\u2019t already know you have ME, don\u2019t tell them. Of course, it is entirely possible you may miss out on the first crank cure to actually work, but it’s much more likely that you\u2019ll just have a very pleasant conversation without having to Google, \u201cHow eating a eat a baby octopus soaked in oat milk saved my life\u201d on your phone and promising that, \u201cYes, no, thank you I will, definitely try that when I get home. Definitely.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"
A Miracle Cure for Miracle Cures \u2018My mate\u2019s Aunt had ME, she took dill capsules three times a day for a week, by the fifth day she was running marathons. You should definitely try it.\u201d \u201cOh gosh, thank you, yes, I will, I\u2019ll look into that.\u201d \u201cNo really, you should.” \u201cYes, no, thank you I […]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"spay_email":""},"categories":[1],"tags":[],"jetpack_featured_media_url":"","_links":{"self":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/841"}],"collection":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/comments?post=841"}],"version-history":[{"count":0,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/841\/revisions"}],"wp:attachment":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media?parent=841"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/categories?post=841"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/tags?post=841"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}