{"id":778,"date":"2020-07-31T21:10:44","date_gmt":"2020-07-31T21:10:44","guid":{"rendered":"https:\/\/humansofchronicillness.org\/?p=778"},"modified":"2021-03-16T20:53:38","modified_gmt":"2021-03-16T20:53:38","slug":"roberta-p","status":"publish","type":"post","link":"https:\/\/humansofchronicillness.org\/2020\/07\/roberta-p\/","title":{"rendered":"Roberta P."},"content":{"rendered":"<h2 style=\"text-align: center;\">Humans of ME\/CFS<\/h2>\n<p>It took all these last 10 years with ME\/CFS to learn how to be reasonably happy. Without cycling, without my freelance job as an interpreter, without so many contacts. I lost these things because of my lack of energy. Keeping in touch with friends requires adhering to other people&#8217;s rhythms and that is often impossible for someone with ME\/CFS.<\/p>\n<p>It all started with a heavy infection that lasted more than a year. My diagnosis came quite soon, but everything had already changed completely in my life.<\/p>\n<p>After a long legal battle with my insurance company, they recognized my inability to work, but eventually stopped paying my indemnity. So, besides trying to stand up a few hours a day, I am trying to get my loss of income indemnity back, via a legal procedure in Court. This is not a helpful treatment&#8230;<\/p>\n<p>I have tried all possible treatments, but the only real one is PACING, slowing down and learning to say NO to myself before saying NO to others. I was 55 when it all started&#8230;I hope this disease will be soon recognized for how severely limiting it really can be.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Humans of ME\/CFS It took all these last 10 years with ME\/CFS to learn how to be reasonably happy. Without cycling, without my freelance job as an interpreter, without so many contacts. I lost these things because of my lack of energy. Keeping in touch with friends requires adhering to other people&#8217;s rhythms and that [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":415,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"spay_email":""},"categories":[1],"tags":[],"jetpack_featured_media_url":"https:\/\/humansofchronicillness.org\/wp-content\/uploads\/2020\/07\/roberta_p.png","_links":{"self":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/778"}],"collection":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/comments?post=778"}],"version-history":[{"count":0,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/778\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media\/415"}],"wp:attachment":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media?parent=778"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/categories?post=778"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/tags?post=778"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}