{"id":699,"date":"2020-07-31T20:46:48","date_gmt":"2020-07-31T20:46:48","guid":{"rendered":"https:\/\/humansofchronicillness.org\/?p=699"},"modified":"2021-03-16T20:53:38","modified_gmt":"2021-03-16T20:53:38","slug":"maddy-f","status":"publish","type":"post","link":"https:\/\/humansofchronicillness.org\/2020\/07\/maddy-f\/","title":{"rendered":"Maddy F."},"content":{"rendered":"<h2 style=\"text-align: center;\">Humans of ME\/CFS<\/h2>\n<p>Day after day I wake up feeling like I spent the night in a dryer. Feeling beat up, aching all over, dizzy, weak, and nauseous every single morning since I was 51. I am now 62. Pain medications have only sometimes helped me get out of bed in the afternoons. I am no longer completely bedbound thanks to the medicine, but I was bedbound for a good three years.<\/p>\n<p>My adrenal glands do not function at all until eight or nine at night. So along with the weakened immune system, aches, and pain, I also have constant stomach problems, Irritable Bowel Syndrome, Gastroesophageal Reflux Disease, Fibromyalgia, vision problems, and memory loss. What\u2019s even worse than all the life changes is the ignorance of doctors.<\/p>\n<p>I am so tired of hoping and praying that new doctors I see will understand. I am always leaving feeling misunderstood and brushed off. I feel like I will just be a gnat until I die. My dream is to have a friend and a doctor who will say, \u201cI get it, I want to help you!\u201d But there is not one ME\/CFS doctor in my area.<\/p>\n<p>So, I just exist. But I will keep dreaming.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Humans of ME\/CFS Day after day I wake up feeling like I spent the night in a dryer. Feeling beat up, aching all over, dizzy, weak, and nauseous every single morning since I was 51. I am now 62. Pain medications have only sometimes helped me get out of bed in the afternoons. I am [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":693,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"spay_email":""},"categories":[1],"tags":[],"jetpack_featured_media_url":"https:\/\/humansofchronicillness.org\/wp-content\/uploads\/2020\/07\/madaline-1.jpg","_links":{"self":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/699"}],"collection":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/comments?post=699"}],"version-history":[{"count":0,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/699\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media\/693"}],"wp:attachment":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media?parent=699"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/categories?post=699"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/tags?post=699"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}