I stared feeling run down and not quite myself nearly four years ago. I had all these strange things happen to my body. I just couldn’t get my head around it. The symptoms I had\/have scared me and at times I actually thought, \u201cI’m dying.\u201d Who gets this exhausted for no reason? There has to be a reason. There is a reason. Why on earth is nobody caring enough to find out?<\/p>\n
I’m only 45 years of age. When I think about it too much it makes me incredibly sad and cry. It’s very frustrating having no help and feeling so helpless. This isn’t normal. We need help.<\/p>\n
I want my life back the way it was four years ago. I was strong. I walked everywhere. I had incredible stamina. I just don’t get it. A doctor actually told me that there is no cure for what I’ve got and I just have to deal with it. She said, “we don’t know what it is,\u201d yet she’s able to tell me I won’t recover from it.<\/p>\n
She said it won’t help lying around and I need to find ways to manage it. I stopped smoking, I hardly drink alcohol, I’ve gone vegetarian, no dairy, no wheat. I pace myself. I\u2019m in a lot of pain. I don’t feel some of the doctors I’ve seen care. I can see and hear their annoyance when they are trying to explain something they don’t know anything about.<\/p>\n
People need to be educated about ME\/CFS. There NEEDS to be funding for this horrible illness. We shouldn’t be made to feel so badly about ourselves. I was told at the very beginning that it was all to do with anxiety and offered the “magic pill” antidepressants. I fought it for a year and gave in, but my symptoms are all still there. I would love to be taken seriously and offered help from someone who knows what causes this illness, but there just doesn’t seem to be anyone around qualified to do that.<\/p>\n
Funding! Funding! Funding! Peace and Love.<\/p>\n","protected":false},"excerpt":{"rendered":"
Humans of ME\/CFS I stared feeling run down and not quite myself nearly four years ago. I had all these strange things happen to my body. I just couldn’t get my head around it. The symptoms I had\/have scared me and at times I actually thought, \u201cI’m dying.\u201d Who gets this exhausted for no reason? […]<\/p>\n","protected":false},"author":1,"featured_media":666,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"spay_email":""},"categories":[1],"tags":[],"jetpack_featured_media_url":"https:\/\/humansofchronicillness.org\/wp-content\/uploads\/2020\/07\/laura_o.png","_links":{"self":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/684"}],"collection":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/comments?post=684"}],"version-history":[{"count":0,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/684\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media\/666"}],"wp:attachment":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media?parent=684"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/categories?post=684"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/tags?post=684"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}