Me llamo Alicia, tengo 44 a\u00f1os, vivo en Bilbao y tengo ENMI-SFC desde hace 25 a\u00f1os. Hace 13 a\u00f1os me dieron el diagnostico claro. He empeorado en los \u00faltimos a\u00f1os. Consegu\u00ed que aceptasen un porcentaje de minusval\u00eda del 65,5% y ahora tengo una peque\u00f1a pensi\u00f3n. Intento vivir independiente de mi familia, comparto piso y mi proyecto es poder mantenerme as\u00ed, aunque hay d\u00edas que pienso que no voy a poder seguir. Mi d\u00eda a d\u00eda es una lucha constante entre lo que quiero hacer y lo que puedo hacer. A veces no puedo hacer nada pero otras puedo salir a la calle y estar unas horas con mis amigos o dando un peque\u00f1o paseo. Estoy bastante en internet pero haciendo cosas poco intensas, \u00e9sto me ayuda a estar comunicada, y se agradece bastante. Espero mejorar alg\u00fan d\u00eda y poder hacer muchos proyectos que tengo ya empezados o en mente.<\/p>\n
(translated)<\/p>\n
My name is Alicia, I\u2019m 44 years old, I live in Bilbao and I\u2019ve had CFS- for the past 25 years. About 13 years ago I received a formal diagnosis. I\u2019ve worsened in the past few years. I was able to petition and was approved for government disability and now I receive a small monthly disability check. I have tried to live independently of my family. I share an apartment and my goal is to remain this way, although there are days when I think I may not be able to do so. My day to day is a constant struggle between what I want to do and what I can actually do. Sometimes I can\u2019t do anything and others I can go out and spend a few hours with friends or take short walks. I\u2019m constantly on the internet and I try to keep it light, this helps me stay connected, and I really appreciate it. I hope to improve in my health one day and do many more projects that I\u2019ve already started or have plans to do.<\/p>\n","protected":false},"excerpt":{"rendered":"
Humans of ME\/CFS Me llamo Alicia, tengo 44 a\u00f1os, vivo en Bilbao y tengo ENMI-SFC desde hace 25 a\u00f1os. Hace 13 a\u00f1os me dieron el diagnostico claro. He empeorado en los \u00faltimos a\u00f1os. Consegu\u00ed que aceptasen un porcentaje de minusval\u00eda del 65,5% y ahora tengo una peque\u00f1a pensi\u00f3n. Intento vivir independiente de mi familia, comparto […]<\/p>\n","protected":false},"author":1,"featured_media":607,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"spay_email":""},"categories":[1],"tags":[],"jetpack_featured_media_url":"https:\/\/humansofchronicillness.org\/wp-content\/uploads\/2020\/07\/alicia_p.png","_links":{"self":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/626"}],"collection":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/comments?post=626"}],"version-history":[{"count":0,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/posts\/626\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media\/607"}],"wp:attachment":[{"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/media?parent=626"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/categories?post=626"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/humansofchronicillness.org\/wp-json\/wp\/v2\/tags?post=626"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}