Cancer, heart disease, HIV/AIDS, Parkinson’s. All are horrific diseases. But those afflicted can find a doctor or medical center for treatment, usually near their home. This is not the case for the more than 100,000+ persons in California with ME/CFS, 25 percent of whom are bed-bound, many unable to tolerate sound or light.
Many cannot work and are homebound, as is my daughter. Many are misdiagnosed and go from doctor to doctor to no avail.
We ask you if you treat our daughter:
- Do not advise a pwME to do physical exercises; they only make patients more ill.
- See the award-winning, free documentary, Unrest (available on Netflix) to better understand ME/CFS.
- Take other courses about ME to get CME credits. There are credits available for watching Unrest at
https://www.unrest.film/cme and other places.
- Check out: Medscape: Diagnosing ME/CFS:
The Experts Weigh In www.medscape.org/viewarticle/907632
- Michigan State Medical Society: Update on Chronic Fatigue Syndrome Part 1: Clinical Diagnostic Criteria for Chronic Fatigue Syndrome/CFS now called Myalgic Encephalomyelitis or ME/CFS
- Update on Chronic Fatigue Syndrome Part 2: Uniting Compassion, Attention, and Innovation to Treat ME/CFS
- Medridge Education: ME/CFS Part 1: Introduction and Identification: ME/CFS Part 2: Etiology and Analeptic Management: https://www.medbridgeeducation.com/courses/details/me-cfs-part-1-introduction-identification-todd-davenport-staci-stevens-mark-van-ness?fbclid=IwAR3NP8KoQA-4QtGBUE_mZ5q0nr68yRFmZBdBd5wE6sxYs5N8W7GnY9inH7I
– Martin W., father of a pwME