Humans of ME/CFS

As the oldest in a family of six, I was taught to work hard, protect and care for my siblings. So, becoming a nurse was an easy choice for my profession. I was tenacious in schooling and on the job. During my last year of nursing school, I caught a horrid virus that temporarily took my hearing. After I recovered, I worked too hard for several years, often filling multiple shifts, missing rest and sleep. I was required to accept a Hepatitis B injection. I lost all my energy and was unable to work. Exhaustion like I never knew ensued. Just taking a bath became a major achievement. I lived with a good amount of stress. My husband, who had a previous brain injury, lacked the ability and desire to be emotionally supportive. I am now so weak that I require many hours of rest. Any activity requires rest right after. I fear the loss of my ability to walk, and cognitive issues are troubling. I have co-morbidities of DDD, RA, OA, and more. I am glad to be alive, but sometimes ashamed of having to use so many resources. I have a strong faith in God and try to understand how best to manage and remember the silver linings!